17th Annual Orlando Creepy Crawl -2023

Team Jeremiah

October 28, 2023 4:00pm - 6:30pm

Our Team Fundraising Page

We run in memory of Sylvan Margadonna and in support of Jeremiah Wong! Hemophilia has been part of my entire life. My father had severe Hemophilia A and needed daily treatment. I am a carrier for the disorder with some minor symptoms. I did pass it on to my son Jeremiah. We found out almost immediately after he was born that he has severe Hemophilia A. He received multiple doses of factor VIII before coming home from the hospital. In his first 2 years of life, we took many trips to the ER to get more infusions of factor VIII. He had so many bruises that I was afraid people would think he was abused. And I have spent countless nights worried about whether or not to take him to the ER. Medication has improved tremendously since my father was little! When Jeremiah turned 2, he started a new medication that I inject in his leg once a month. This is such an improvement over going to the ER to get an IV medication. He is doing well, but I will always worry about falls and accidents. The Bleeding Disorders Foundation of Florida has been a source of comfort, community, and education. They were my first call after his diagnosis. They instantly connected me with other moms and helped me know what to do next. We have a great group of moms that get together regularly for play dates and are available for chats. Please consider walking/running with us or donating to this amazing organization. Your support will help families like mine!

Our Team

$882.50

achieved

$500.00

goal

of your goal reached

0

days

0

hours

0

mins

0

secs

Recent Activity

Our Supporters

  • Greg & Doree Rice October 2023 $50.00
  • Kristin Wong From Karen Allen October 2023 $21.00
  • Charlene and Wheeler Newman October 2023 $25.00
  • Ryan Newman October 2023 $25.00
  • Seth Shockley October 2023 $20.00
  • Jason Wong October 2023 $210.00
  • Mattamy Homes October 2023 $200.00
  • Greg & Doree Rice October 2023 $50.00
  • Wendy Pendleton September 2023 $50.00
  • Kristin Wong September 2023 $27.50