About the Conference

The CJD Foundation's Family Conference, held annually in Washington, D.C., brings together prion disease experts and families affected by prion disease.

Saturday and Sunday, we’ll learn about the latest scientific discoveries. With the help of Dr. Brian Appleby, our Medical Director, we invite scientists conducting new and promising prion disease research to speak to our families about their work. We’ll also hear about the work of the CJD Foundation, the National Prion Disease Pathology Surveillance Center, the Centers for Disease Control and Prevention, and the Alberta Prion Research Institute.

Monday is devoted to visiting your state representatives on Capitol Hill. We set up the appointments for those families wishing to participate and provide advocacy training on Sunday afternoon. This is a unique opportunity to make our voices heard and to request continued funding for prion disease surveillance.

Sponsorship Opportunities

If you can, consider helping to cover conference expenses by sponsoring a meal, binders, conference bag, flowers, or any of the other options. Registration fees cover just a portion of costs – your generous sponsorships and donations enable us to continue hosting this outstanding conference.


Hotel reservations must be made separately with the Washington Court Hotel.

Call 202.628.2100 to reserve your room. Our special conference rates are available on a first-come, first-served basis. If you stay outside the hotel, you are still required to register for the conference.

If you prefer to complete your registration offline, please download this form and follow the instructions to mail, email or fax it in.

Event Details

July 10 - 12, 2020

Washington Court Hotel
525 New Jersey Ave NW
Washington, DC 20001

Advocacy Day:
July 13, 2020