Charlie was diagnosed with Severe Hemophilia A shortly after birth.  We had no family history of this genetic disorder, so this was quite a surprise for us.  There are approximately 400 boys born with hemophilia each year and 1/3 of those cases are families like us with no previous history! We were thrown into the world of bleeding disorders and had to learn quickly! We are thankful that we found such great resources available and had many opportunities for education to help us provide the best care we could for Charlie. 

The Bleeding Disorders Foundation of North Carolina has been a key resource for our family! Their mission is to improve the quality of life of persons affected by bleeding disorders through advocacy, education, promotion of research, and delivery of supportive programs and services. This is our 7th year to participate in the Family Festival & Walk as team Charlie's Troopers! We love supporting this event and helping to raise funding for this amazing organization!  They are truly achieving what their mission states.  We appreciate all they do behind the scenes to spread awareness and advocate for families like us in so many ways. We are thankful to have a community of people who share in this unique aspect of Charlie's life.

2023

2021 Virtual Event

2019

2017 Our First Year