At two months old, Eliana began to have seizures and over time they became stronger and more frequent. The breaking point for her medical team came the day Eliana had a 3 hour seizure, with no relief from medication, and had to be intubated. With many test coming back negative, genetic testing was done and she was found to have the SCN1A gene mutation and was diagnosed with Dravet Syndrome.
Your Story
Eliana has survived multiple intubations, two brain surgeries, g-tube placement, constant medical treatments and daily therapies. The resources currently available are not enough! Help us raise funding to support researchers find a cure for Dravet ??
Eliana is 4 years old. As her mother, I want to hear her say "mama" one day, I want to see her take her first steps, even more important, I want to see her live a long wonderful life. Our community is loosing too many dravet warriors. I pray I never have to bury my girl and finding a cure is the answer ??
Jesus Morales
No matter what we will always be part of each other! I pray that one day they will find a cure not just for this condition but for all the illnesses that affect those who suffer and struggle to have a normal life and their chance of survival is very slim. God blessed
2 weeks ago$147.10
Anonymous
4 weeks ago
Estephanie Charria
The strength Eliana has is beyond amazing. I hope that someday she won’t have to be so strong. Always praying and hoping for a cure for her and all the children out there.
4 weeks ago$103.59
David Edwards
Estephanie has told us what a remarkable child Eliana is and what an amazing patient she is. Our family would love to see a cure for your beautiful child someday.
Regards,
David, Katie, Anna, and Shaan Edwards
Last month$103.59
Jesus Morales
No matter what we will always be part of each other! I pray that one day they will find a cure not just for this condition but for all the illnesses that affect those who suffer and struggle to have a normal life and their chance of survival is very slim. God blessed
2 weeks ago$147.10
Estephanie Charria
The strength Eliana has is beyond amazing. I hope that someday she won’t have to be so strong. Always praying and hoping for a cure for her and all the children out there.
4 weeks ago$103.59
David Edwards
Estephanie has told us what a remarkable child Eliana is and what an amazing patient she is. Our family would love to see a cure for your beautiful child someday.
Regards,
David, Katie, Anna, and Shaan Edwards
Last month$103.59
