My name is Jen, and I am the daughter to two beautiful daughters named Maggie and Cora. I am proud Dravet Syndrome Foundation Parent Ambassador and one of the original creators of the very successful Dye it for Dravet fundraiser.

I am passionate to raise awareness and funds to cure Dravet Syndrome in efforts to support kids like our Cora who suffer unnecessarily.  Cora is our youngest daughter (pictured in my profile) who has Dravet Syndrome.  She was born in 2020 during the pandemic and experienced her first seizure randomly at 5 months.  She experienced 3 more seizures before being tested and diagnosed with Dravet Syndrome at 9 months young. In her short 3 years on this planet, Cora has endured 26 seizures and has been hospitalized 15 times, including 4 Pediatric Intensive Care Unit stays on life support.  Cora has endured multiple rounds of testing and bloodwork as well as participated in medical studies in efforts to learn more about this disorder to find a cure.  She has participated in hours of therapy for her speech, vision, development, occupational and physical needs.  Cora’s diet has also been medically managed by Ketogenic and Modified Atkins protocols.  She takes at least 9 medications a day EVERY DAY in effort to minimize her seizure activity.

Cora is the bravest and most resilient person I know.  She has endured so much in these 3 years and is still a loving and adventurous toddler.  We are blessed to be her parents and support her in this life. 

Your financial sacrifice that equates to a cup of coffee, tea, or your other favorite beverage is a small price to pay for the potential huge payout of a cure for thousands of children like her.  Help be a part of the solution for Dravet Syndrome.

We need to find a CURE for this dreadful disease.  My wish is a future where Cora can be herself and live her life without the fear of an unknown medical situation robbing her joy.