Our Team Fundraising Page
Jake’s Superhero Journey: Walking for the Bleeding Disorders Community
DID YOU KNOW THAT 91% OF HFGF FUNDRAISING DOLLARS GO BACK TO THE FLORIDA BLEEDING DISORDERS COMMUNITY? THOSE DOLLARS SEND OUR KIDS TO A MEDICALLY SUPERVISED CAMP, PROVIDE FINANCIAL EMERGENCY ASSISTANCE AND SCHOLARSHIPS, AS WELL AS CONTRIBUTE TO EDUCATIONAL PROGRAMS AND ADVOCACY EFFORTS.
When Jake was just 7 years old, a routine ENT surgery turned our world upside down. What should have been a simple procedure revealed a life-changing diagnosis: Hemophilia. We soon learned that Jake wasn’t alone in our family—his mom, sister, and aunt also live with this bleeding disorder. Overnight, our lives became a crash course in resilience, courage, and hope.
Managing Hemophilia has been a struggle. From learning to infuse medications to navigating the emotional and physical challenges, every day brings new hurdles. But through it all, Jake and our family have found strength in community—and that’s where the Bleeding Disorders Foundation of Florida (BDF) comes in.
BDF is more than an organization; it’s a lifeline for families like ours. Most of the funds donated go directly back into the bleeding disorders community, making a tangible impact. They provide medical alert bracelets to keep our loved ones safe, scholarships to empower young people with bleeding disorders, and unforgettable experiences like Camp Spirit at Camp Boggy Creek, where kids like Jake can just be kids—laughing, playing, and connecting with others who understand their journey. BDF also funds advocacy, education, and so much more to support our community.
That’s why we’re lacing up for the 18th Annual Superhero Walk on September 20, 2025, at Vinoy Park in St. Petersburg. Our team, Super Coagulators, is walking to raise funds and awareness for BDF and the bleeding disorders community. We want the world to know about the challenges we face—and the incredible strength it takes to overcome them.
Your support means everything. Every dollar donated helps BDF continue its vital work, ensuring no family feels alone in this fight. Join us in raising awareness, celebrating our superheroes, and making a difference for Jake and countless others. Donate today, share our story, or come cheer us on at the Superhero Walk!
Together, we can shine a light on bleeding disorders and show the world what true heroism looks like.
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.r-2167vc{position:absolute;visibility:hidden;top:0;width:50px;pointer-events:none} .r-2167vc.loaded{visibility:visible;top:50vh;width:50px}Our Team
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Jake Desgrosiellier Team Captain $245.75
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Kathy Desgrosiellier Team Captain $103.75
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James Harriss $26.25
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Kai Allen $5.00
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Scott Desgrosiellier Team Captain $0.00
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Stefanie Harriss Team Captain $0.00
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Lily Weems Team Captain $0.00
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Paul Rupp $0.00
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Janice Chaney $0.00
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Angela Herrin $0.00
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Nicholas Dobbs $0.00
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Nathan Dobbs $0.00
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Connor Walsh $0.00
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Isabella Walsh $0.00
Recent Activity
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Kai Allen joined Super Coagulators
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Isabella Walsh joined Super Coagulators
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Connor Walsh joined Super Coagulators
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Nathan Dobbs joined Super Coagulators
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Nicholas Dobbs joined Super Coagulators
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Our Supporters
- Anonymous September 2025
- Angela Herrin September 2025 $20.00
- Edward Buggy August 2025 $25.00
- Christian Bergstrom August 2025 $52.00
- Tracy Nicholl August 2025 $20.00
- Anonymous July 2025 $52.50
- Christian Bergstrom August 2025 $52.00
- Mema Desgrosiellier July 2025 $50.00
- Stefanie Harriss July 2025 $26.25
- Edward Buggy August 2025 $25.00