Leah is 9 years old — full of energy, sass, and joy — and she lives with Dravet Syndrome, a rare and severe form of epilepsy that affects nearly every part of daily life. Despite countless challenges, Leah continues to shine bright. Her laughter, her courage, and her strength inspire everyone who meets her.

This year, our family and friends are coming together as Team Light Up for Leah to raise awareness and funds for the Dravet Syndrome Foundation (DSF). The DSF funds critical research, supports families, and advocates for better treatments and a future where no family has to fight this battle alone.

We’re walking and running to:
✨ Support groundbreaking research for Dravet Syndrome
✨ Empower families living with rare epilepsy
✨ Honor Leah and her unstoppable light

Every donation — big or small — makes a difference. Together, we can help shine a light on Dravet Syndrome and bring hope to families everywhere.

Join our team, donate, or share our page to help us Light Up for Leah.

#LightUpForLeah #NotTodayDravet #DravetSyndrome #TeamLeah #DSFAmbassador