2025 Dash for Dravet

Marching for Molly

October 1, 2025 6:00am - November 27, 2025 11:59pm

Thanksgiving Day Virtual Turkey Trot

2025 Dash for Dravet

Molly's Story

Thank you for joining our family in raising funds for the Dravet Syndrome Foundation

 

Seven years ago our daughter, Molly, was diagnosed with Dravet Syndrome. After having her first seizure at 8 months old followed by several more prolonged seizures that were not being controlled by medication, we did genetic testing that confirmed Molly had the SCN1A gene mutation. That specific mutation, along with the hour-long seizures that were not always tied to illness, led her neurologist to diagnose her with Dravet Syndrome. The outlook for children with this disease is oftentimes very devastating for families. We are so happy to share that seven year later, Molly's story has been nothing short of a miracle. She is in 2nd grade and in school with her peers. She is so sweet, funny, and beyond brave. She is also 11 months seizure free! Her last seizure was on Thanksgiving Day last year, so it makes this fundraiser a little extra meaningful to us. We are so hopeful that this Thanksgiving she will be celebrating one year or seizure freedom!

 

 

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