Tell us why you're raising money!

WE FIGHT FOR RESEARCH AND BETTER MEDICAL TRAINING so that others don't have to suffer the way our family did. WE FUNDRAISE TO FUND RESEARCHERS WHO ARE DEDICATED TO FIND MY PRINCESS A CURE?

Eliana Lopez, who happens to be my 5yr old daughter. Her journey began on January 3, 2019 and around 12 noon when she had her first seizure, Yes, this date and time is something I will never forget. Within a month, we had been to our local ER who belittled me and advised that I was possibly suffering with Postpartum Depression and 'Exaggerating' her random muscle movements. There was a great divide between the nurses and pediatricians.

Nurses would validate my seizure concerns after watching the many videos I had, while the Doctors wouldn't even look at them. 3 months later my daughter was on life support, after another seizure that lasted approximately 6 hours, unresponsive to seizure medications. Do you know what my first concern was while I held my 6 month old baby girl in my arms and called 911? | needed to make sure that the ambulance took me to another hospital other than the one who had denied my concerns because I was scared they would let her die. As a consolation prize to my reports of her having seizures being denied, I was told, and I quote, "To put your mind at ease, we will run a genetic test on your daughter. However, please understand that it WILL come out NEGATIVE". They didn't anticipate my child waking up. But that one test, ONE test identified her rare sickness and diagnosed my daughter. She has a rare genetic mutation, Dravet Syndrome.