The phrase "You are one in a million" has been romanticized for years to mean you are special. However, as an individual with an ultra rare bleeding disorder, being "one in a million" has been synonymous with feeling alone and misunderstood for most of my life. In fact, I was 27 years old when I first saw a brochure explaining what Factor V Deficiency was and I had never felt more seen! Ever since then, I have understood the importance of having a place where I can go and people not only understand what I live with but also strive to work towards finding better treatment, representation and education for all of us. A donation is the first step towards guaranteeing that we have the access to proper education and the resources needed to be better advocates for ourselves and our community.
Anonymous
Support is essential. Her story highlights organizations that provide understanding, connection, and advocate for better treatment, representation, and education. Helping others empowers them. Thank you for being “one in a million”with a commitment to making a difference.
12 hours ago