Every day, the CJD Foundation responds to calls and emails on our 7-day Helpline from families who are reeling from a CJD diagnosis, and from professionals and families who are caring for a CJD patient and need answers, resources, and referrals.
Every month, we:
- Host support groups for caregivers, bereaved families, those at risk of genetic prion disease, and others.
- Offer medical education sessions for physicians and other professionals, and share vital information through our website and other resources
Every year, we:
- Award research grants and fellowships to help scientists explore mechanisms of prion disease and pursue potential diagnostics and treatments.
- Educate policymakers to be sure they recognize the brutal impact of CJD on families and understand how to help support Prion Disease surveillance and research.
- Host a conference that connects families with professionals, provides updates from grant recipients and experts, and enables families to speak one-on-one with Prion Disease experts. This July, families will hear from five organizations that are actively working to develop drugs that target Prion Disease.
In January 2025, thanks to your support, the CJD Foundation awarded 7 research grants and 2 fellowships. This Spring, as we invite researchers to apply for the next round of research grants, we need your help to continue funding this pipeline of progress. For information, visit www.cjdfoundation.org/grant-recipients.
Please help us to continue this important work by making a donation today, of any amount. If your employer matches donations, please request a match to double your impact. Together we can continue to make a difference in the fight against prion disease!