2026 DSF Family & Professional Conference

The 2026 DSF Family & Professional Conference is hosted by Dravet Syndrome Foundation. Our biennial conference brings together families affected by Dravet syndrome, healthcare providers, researchers, and industry partners to foster collaboration, education, and advocacy. The goal is to accelerate research, improve care, and strengthen support for those impacted by the condition. The conference provides a platform to raise awareness, share the latest scientific and clinical advancements, promote equitable access to resources and treatments, and empower the patient community through connection and knowledge-sharing. Over the course of three transformative days, you’ll have the opportunity to connect with fellow families, engage with researchers and clinicians, and gain hope from the latest breakthroughs in care. With a mix of scientific sessions and social events, the conference offers something valuable for everyone!

You can look forward to:

• Educational sessions covering all facets of Dravet syndrome, including treatment, research, clinical trials, and day-to-day care
• A patient activity room designed with comfort and fun in mind
• Sibling camp to keep brothers and sisters engaged and supported
• Evening socials and dinners to foster new friendships and celebrate our journey

Full Agenda Available in late January

• Thursday, June 25 (starting at 12pm): Clinical Trial Updates, Welcome Sessions, Community Dinner
• Friday, June 26 (starting at 8am): Science and Research Sessions, Community Dinner, Moms' Night Out
• Saturday, June 27 (starting at 8am): Wings of Hope, Family Sessions, Workshop, Community Dinner, Dads' Night Out

We offer a Sibling Camp and a Patient Activity Room during General Session hours on both Friday and Saturday. Activities will be on site at the hotel. Patients accessing the activity room must be accompanied by an adult caregiver at all times.  

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