What is Move Your Pheet? 

Move Your Pheet is an annual fundraising and movement challenge held each May in celebration of PKU Awareness Month. This dynamic event encourages participants to get moving through walking, running or biking—all while raising funds to support National PKU Alliance and its mission to improve the lives of individuals and families affected by PKU. However you decide to Move Your Pheet, whether hosting your own in-person event or a virtual format, you will be making a big impact!

What is Move Your Pheet raising money for? 

Funds raised during the Move Your Pheet fundraising challenge will go towards supporting the mission of National PKU Alliance, including: 

• Community support programs
• Educational resources for navigating life with PKU, from birth through adulthood
• PKU Patient Registry
• Research of exciting new treatments, such as gene therapy and medical devices, like a home Phe monitor

I want to move my pheet! How do I participate? 

Participate Virtually Any Time in May!

1. Register
Visit this page to register! You can sign up either as an individual or join as part of a team.  

2. Set a Fundraising Goal 
Choose how much you’d like to raise for the National PKU Alliance. This can be done during the registration process or adjusted later!

3. Share and Encourage Donations 
Share your participation on social media and invite friends, family, neighbors and colleagues to show their support by donating or getting involved.

Do I have to join a team? 

No. You can register as an individual who simply, “Moves their Pheet” and/or asks others to donate to this worthy cause.  

Do I have to walk, run or bike? 

No. If you’d rather focus on fundraising, you can still participate by sharing your page, raising awareness and collecting donations throughout the month of May.

Is there a registration fee to participate? 

There is a registration fee of $30 to participate in the 2026 Move Your Pheet fundraising challenge. Registration comes with a Move Your Pheet t-shirt for each registered participant. T-shirts are available to U.S.-based households only.

The registration fee and all donations are non-refundable and non-transferable. This means that once a donation is posted to a participant’s account, it cannot be moved to another participant’s account for any reason. Additionally, donations cannot be refunded. 

How do I get a t-shirt? 

Your performance t-shirt will be mailed to you following registration for the event (available to U.S.-based households only). In order to receive your t-shirt by May 1, please complete your registration by April 12, 2026. 

I'm located outside of the United States. Can I still participate?

Absolutely! We welcome participants from around the world to join the Move Your Pheet movement. Please note that due to shipping limitations, t-shirts and prizes are only available to U.S.-based participants at this time.

Is there a minimum amount of fundraising I must do? 

No. But, we hope that you participate to help NPKUA improve the lives of individuals living with PKU. We provide you with the tools to make fundraising fun and easy! For an idea of where to start, we recommend setting individual goals at $250 and team goals at $1000.   

Can I host an in-person fundraising event?

Absolutely! We encourage you to rally your community and Move Your Pheet in person. Visit our In-Person Events page for helpful information on hosting your own event, and be sure to share your plans with us so we can help spread the word!

Can I mail in my donation?  

Yes! Donations can be mailed to 2014 Electric Road #212, Roanoke, VA 24018
Please make checks out to NPKUA, indicate that your donation is for “Move Your Pheet 2026” and write the individual or team to credit the donation to, if applicable. 

Can team members share or split donations? 

If you are mailing in a check donation, you may ask us to divide that donation among team members. 

Are donations tax-deductible? 

Yes. All monetary donations are tax-deductible to the extent allowed by law. 

Are registration fees tax-deductible? 

No. Registration fees are not tax-deductible. 

What is a matching gift and how do I apply for one? 

Many companies offer employee matching gift programs. This means that when an employee makes a donation to a cause or non-profit organization, the corporation will “match” that donation with an equal (or greater) amount to the same organization or group. Encourage your participants and donors to ask if their company matches gifts and contact susie@npkua.org with any questions. 

Will there be prizes? 

Yes! The top three individuals and top three teams who raise the most funds will be celebrated on social media and awarded prizes. View our Prizes and Awards page for full details. These incentives are non-transferable and have no cash value.  

Can I share my Strava fitness activity on my fundraising page?

Yes! Follow the steps outlined on this page to display your Strava activity within your fundraising page.