Our Team
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Frances Rivera Pacheco Team Captain $313.75
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Maribel Pacheco Santiago $52.50
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Vanessa Kilmer
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Erika Freidly
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Christopher Freidly
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Nicholas Freidly
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Russell McBride
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Cole Pyland
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Jason Pyland
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Leah Pyland
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Greg Pyland
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Willow Pyland
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Bob Fonseca $0.00
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One in a Million
The phrase "You are one in a million" has been romanticized for years to mean you are special. However, as an individual with an ultra rare bleeding disorder, being "one in a million" has been synonymous with feeling alone and misunderstood for most of my life. In fact, I was 27 years old when I first saw a brochure explaining what Factor V Deficiency was and I had never felt more seen! Ever since then, I have understood the importance of having a place where I can go and people not only understand what I live with but also strive to work towards finding better treatment, representation and education for all of us. A donation is the first step towards guaranteeing that we have the access to proper education and the resources needed to be better advocates for ourselves and our community.
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Recent Activity
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Ultra Rare Power has earned the Team : Fundraising Achieved Badge
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Ultra Rare Power has reached their fundraising goal of $1,000.00!
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Bob Fonseca donated $121.25 to Ultra Rare Power
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Bob Fonseca joined Ultra Rare Power
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Maribel Pacheco Santiago joined Ultra Rare Power
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Our Supporters
- Bob Fonseca To you and a great cause, I love you!! Last month $121.25
- Frances Rivera Pacheco I believe in the cause and I am grateful for all the times BDFF has been there for me Last month $183.75
- Maribel Pacheco Santiago February 2025 $52.50
- Vanessa Kilmer February 2025 $105.00
- Kelly Wornall Proud of you for spreading awareness! ❤️ February 2025 $100.00
- Frances Rivera Pacheco I believe in the cause and I am grateful for all the times BDFF has been there for me Last month $183.75
- Bob Fonseca To you and a great cause, I love you!! Last month $121.25
- Vanessa Kilmer February 2025 $105.00
- Kelly Wornall Proud of you for spreading awareness! ❤️ February 2025 $100.00
- Maribel Pacheco Santiago February 2025 $52.50