2025 15th Annual Jacksonville Safari Walk

Ultra Rare Power

March 1, 2025 8:00am - 11:30am

Our Team

One in a Million

The phrase "You are one in a million" has been romanticized for years to mean you are special. However, as an individual with an ultra rare bleeding disorder, being "one in a million" has been synonymous with feeling alone and misunderstood for most of my life. In fact, I was 27 years old when I first saw a brochure explaining what Factor V Deficiency was and I had never felt more seen! Ever since then, I have understood the importance of having a place where I can go and people not only understand what I live with but also strive to work towards finding better treatment, representation and education for all of us. A donation is the first step towards guaranteeing that we have the access to proper education and the resources needed to be better advocates for ourselves and our community.

$1,000.00

achieved

$1,000.00

goal

of your goal reached

0

days

0

hours

0

mins

0

secs

Join Our Team!

Recent Activity

Our Supporters

  • Bob Fonseca To you and a great cause, I love you!! March 2025 $121.25
  • Frances Rivera Pacheco I believe in the cause and I am grateful for all the times BDFF has been there for me March 2025 $183.75
  • Maribel Pacheco Santiago February 2025 $52.50
  • Vanessa Kilmer February 2025 $105.00
  • Kelly Wornall Proud of you for spreading awareness! ❤️ February 2025 $100.00
  • Frances Rivera Pacheco I believe in the cause and I am grateful for all the times BDFF has been there for me March 2025 $183.75
  • Bob Fonseca To you and a great cause, I love you!! March 2025 $121.25
  • Vanessa Kilmer February 2025 $105.00
  • Kelly Wornall Proud of you for spreading awareness! ❤️ February 2025 $100.00
  • Maribel Pacheco Santiago February 2025 $52.50