My Personal Fundraising Page
*English message below*
Bonjour, aidez-moi à ammasser des fonds pour les enfants atteints du syndrome de Rett, une maladie neurologique grave. Chaque don compte pour aider les familles et financer la recherche pour trouver une cure. Merci beaucoup d'avance pour votre support! ATTENTION: les dons se font en dollars américains sur cette page donc je vous invite à considérer le taux de change lorsque vous décidez le montant de votre don. Merci beaucoup de votre compréhenion.
Please help me support Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome.
Rett Syndrome is a debilitating neurological disorder that predominantly affects females but can affect boys. It is the leading genetic cause of severe impairment in girls, brought on by a single gene mutation that leads to underproduction of an important brain protein.
Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Many lose their ability speak, walk or use their hands, and depend on their families for every part of their day. Complications include seizures, sudden death in their sleep and scoliosis.
Despite their physical disabilities, girls and boys with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to their recovery.
Today, there is no cure. But Rett Syndrome is CURABLE! Research has proven once protein levels are back to normal levels, symptoms subside.