My Personal Fundraising Page
Please help me support Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome.
Rett Syndrome is a debilitating neurological disorder that predominantly affects females but can affect boys. It is the leading genetic cause of severe impairment in girls, brought on by a single gene mutation that leads to underproduction of an important brain protein.
Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Many lose their ability speak, walk or use their hands, and depend on their families for every part of their day. Complications include seizures, sudden death in their sleep and scoliosis.
Despite their physical disabilities, girls and boys with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to their recovery.
Today, there is no cure. But Rett Syndrome is CURABLE! Research has proven once protein levels are back to normal levels, symptoms subside.
My Supporters
- Eva Schroeder Way to go, Rylan! February 2022 $50.00
- Lanie Cullen Good Job Rylan! February 2022 $50.00
- Decatur Community Players Go Rylan! February 2022 $100.00
- Ashley McCullough We're SO proud of your advocacy for your friend and many more, Rylan!! Love, Norah and Lucien February 2022 $50.00
- REBECCA SAULS YOU ARE AWESOME! February 2022
- Decatur Community Players Go Rylan! February 2022 $100.00
- Babcia Duda You go, girl! November 2021 $100.00
- Gail Hudson My thoughts and prayers will be with you, mom, and Caroline every step of the way. So proud of you Rylan. October 2021 $100.00
- Eva Schroeder Way to go, Rylan! February 2022 $50.00
- Lanie Cullen Good Job Rylan! February 2022 $50.00