My Personal Fundraising Page
Hi to All! My name is Kristin and I am excited to do the Disney Princess Half Marathon! This November I will be 40 and I thought it would be fun to complete a half marathon at 40! In the past I did the Disney full marathon and the half marathon and I'm excited to get back into training, this time as a mom to 3 boys! My husband Mike is also doing the race with me. If anyone would like to join us, the more the merrier!
Please help me support Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome and support my efforts to get back into running. We are running and raising in honor of Emma Dieter!
Rett Syndrome is a debilitating neurological disorder that predominantly affects females but can affect boys. It is the leading genetic cause of severe impairment in girls, brought on by a single gene mutation that leads to underproduction of an important brain protein.
Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Many lose their ability speak, walk or use their hands, and depend on their families for every part of their day. Complications include seizures, sudden death in their sleep and scoliosis.
Despite their physical disabilities, girls and boys with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to their recovery.
Today, there is no cure. But Rett Syndrome is CURABLE! Research has proven once protein levels are back to normal levels, symptoms subside.