The entire English Family will be participating in this year's Disney Princess 5k in February with Girl Power 2 Cure! But we need your help!

In September 2018, our lives changed forever. Charlie had been diagnosed with Rett syndrome, an incurable neurologic disorder that would rob her of her ability to walk, talk, and use her hands. In February 2019, Jenn ran her first Princess half marathon and met the wonderful people of Girl Power 2 Cure, an organization determined to find a cure through education and research. Jenn has run every year since then and this year the whole family is participating, even Charlie! Please consider dontaing to help raise money to END RETT!

Rett Syndrome is a debilitating neurological disorder that predominantly affects females (but can also affect boys). Rett Syndrome is the leading genetic cause of severe neurological impairment in girls and is characterized by a single gene mutation that leads to underproduction of an important brain protein known as MECP2.

Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Most lose their ability to speak, walk or use their hands, and depend on their families for every part of their day. Complications also include seizures, scoliosis, and the potential for sudden death.

Despite their physical disabilities, girls and boys with Rett Syndrome function at a similar cognitive level to their peers. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to a cure and their recovery. 

Today, there is no cure. But Rett Syndrome is potentially CURABLE! Mouse and primate experimental treatments have proven that once MECP2 protein levels are restored to normal levels, symptoms subside.