Please help me support Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome.

In Memory of Skylar Ann Proffitt

#SkylarStrong

Please help me support Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome.

I will be running 22.5 miles this year in honor and memory of Skylar Ann. I am keeping my promise to her, to continue to  fight to raise awareness and funds to CURE RETT SYNDROME. This will be my 13th Year running and my 6th year of keeping my promise to Skylar after she has gained her heavenly wings.

Rett Syndrome is a debilitating neurological disorder that predominantly affects females (but can also affect boys). Rett Syndrome is the leading genetic cause of severe neurological impairment in girls and is characterized by a single gene mutation that leads to underproduction of an important brain protein known as MECP2.

Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Most lose their ability to speak, walk or use their hands, and depend on their families for every part of their day. Complications also include seizures, scoliosis, and the potential for sudden death.

Despite their physical disabilities, girls and boys with Rett Syndrome function at a similar cognitive level to their peers. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to a cure and their recovery. 

Today, there is no cure. But Rett Syndrome is potentially CURABLE! Mouse and primate experimental treatments have proven that once MECP2 protein levels are restored to normal levels, symptoms subside.

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