My Personal Fundraising Page

Please help me support Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome.

Rett Syndrome is a debilitating neurological disorder that predominantly affects females (but can also affect boys). Rett Syndrome is the leading genetic cause of severe neurological impairment in girls and is characterized by a single gene mutation that leads to underproduction of an important brain protein known as MECP2.

Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Most lose their ability to speak, walk or use their hands, and depend on their families for every part of their day. Complications also include seizures, scoliosis, and the potential for sudden death.

Despite their physical disabilities, girls and boys with Rett Syndrome function at a similar cognitive level to their peers. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to a cure and their recovery. 

Today, there is no cure. But Rett Syndrome is potentially CURABLE! Mouse and primate experimental treatments have proven that once MECP2 protein levels are restored to normal levels, symptoms subside.

My Supporters

  • John DeWeese Go Lilah! August 2024 $50.00
  • Anonymous Very proud of you, run hard and have fun July 2024
  • Michael Clark Way to support those in need! July 2024 $100.00
  • Fly Eagles Fly July 2024 $20.00
  • Kristen Fraser Go Lilah!! July 2024 $100.00
  • Michael Clark Way to support those in need! July 2024 $100.00
  • Kristen Fraser Go Lilah!! July 2024 $100.00
  • Anonymous July 2024 $100.00
  • John DeWeese Go Lilah! August 2024 $50.00
  • Chris Gray July 2024 $50.00

$700.00

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$650.00

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