Including Paul's Fishermen and others that wish to honor someone they love that has faced, or is facing this journey.
Pulmonary Fibrosis has and continues to touch our family every day. This year on Paul's Second Lungaversary, we invite you to join us in raising awareness and funds to research a cure to this terrible disease. You are also invited to join our family day that will surely include love and laughter.
Around the time of Paul's diagnosis in 2015, new medicines were just being approved for use in the United States. These medicines slow progression but do not provide a cure. They are also quite expensive. We would like to see change in this, and would especially love to see a cure.
We are forever grateful that Paul qualified for and tolerated the medicine, which kept him stable until his transplant. His donor remains in our hearts every single day!
Please register to join the Make Every Breath Count team. This includes Paul's Fishermen, and anyone else that wants to walk with us in memory or in honor of someone that has/is facing this journey.
If you can't make it, but would like to make a donation, we thank you from the bottom of our hearts.