My Grandfather had severe Hemophilia A. I was just a little girl when I watched him struggle with the disease and suffer from joint pain and internal bleeds. Having hemophilia in the 80’s was very different than it is now.
My Mother is a hemophilia carrier as well as myself. It was such a miracle that my very own son did not have the disease!
As a tribute to my Grandfather, I choose to do this run and raise funds for hemophilia.
DID YOU KNOW THAT 91% OF HFGF FUNDRAISING DOLLARS GO BACK TO THE FLORIDA BLEEDING DISORDERS COMMUNITY? THOSE DOLLARS SEND OUR KIDS TO A MEDICALLY SUPERVISED CAMP, PROVIDE FINANCIAL EMERGENCY ASSISTANCE AND SCHOLARSHIPS, AS WELL AS CONTRIBUTE TO EDUCATIONAL PROGRAMS AND ADVOCACY EFFORTS.