About Dementia Alliance of North Carolina

Dementia Alliance of North Carolina seeks to improve the lives of North Carolinians impacted by dementia as well as empower their caregivers through support, education and research.

To learn more about our programs visit:

About CEUs

3.0 CEUs (North Carolina Division of Health Service Regulation – approved) are included with your professional registration.

If you are unsure as to whether or not these credits are applicable to your
professional organization, please check with your certifying board directly or visit https://info.ncdhhs.gov/dhsr/acls/ceu.html

Your certificate will be emailed.

More About the Film

You may be familiar with the feature movie Robin's Wish which reveals the true story of actor Robin Williams and his battle with undiagnosed Lewy Body dementia (LBD).

From that movie, the Lewy Body Dementia Association (LBDA) and the producers of Robin's Wish created a 45-minute documentary adaptation, SPARK: Robin Williams and his Battle with Lewy Body Dementia. 

LBDA uses this educational film to share information about Robin Williams and his battle with undiagnosed LBD to promote community and professional awareness and education. This adaptation looks deeper into the disease, its biology, clinical symptoms, and its impact on both the person with LBD and the primary caregiver.

WARNING: This movie discusses a family's experiences with LBD and suicide. It may be triggering to viewers with similar experiences.


About This Online Symposium

1:00 PM - 5:30 PM

This is our 3rd Annual Dr. Daniel I. Kaufer Memorial Caregiver Conference. Dr. Daniel Kaufer served on the Dementia Alliance Board of Directors from 2006 until his death in July 2020.

Dr. Kaufer was a source of knowledge, answers and hope for the families he served at the UNC Memory Disorders Clinic. His vision of “what dementia care should be” played out in his research and how he helped families get the resources they needed and deserved.  

Dementia Alliance of North Carolina is honored to continue his legacy by establishing the Dr. Daniel Kaufer Memorial Caregiver Conference and the Dr. Daniel Kaufer Memorial CARE Fund.


This event will be recorded and shared with those who register.

The recording will be for the the 1:00 pm  - 3:25 pm sessions. The movie will not be available to watch later. 

Symposium Agenda:

1:00 PM (EST):
Heather Hooper, Executive Director, Dementia Alliance of North Carolina

Updates on Lewy Body Dementia Research

Andrea Bozoki, MD, Neurologist, Chief, UNC Division of Memory and Cognitive Disorders, Professor, Neurology, UNC-Chapel Hill School of Medicine, UNC Memory Disorders Program, Outreach and Engagement Core Leader, Duke-UNC Alzheimer’s Disease Research Center

Practical Strategies for an Easier Lewy Body Dementia Journey
Pat Snyder, Author, Support & Education Group Leader for Caregivers, Family Caregiver


Managing Emergency Room and Hospital Visits with Lewy Body Dementia
Lynette Wilson, FNP, Parish Nurse, Support & Education Group Leader for Caregivers, Family Caregiver


Q&A with our Speakers



A Special Showing of SPARK: Robin Williams and His Battle with Lewy Body Dementia

SPARK is an intimate portrait of Robin Williams and his battle with Lewy Body Dementia (LBD). The film highlights key messages that can enhance learning and understanding of LBD, improve diagnosis and detection, and provide resources and support.

SPARK Panel Discussion


Wrap up and Close