Alexander Robert Willgress was born at 1:06 pm on Friday, April 18th, 2008. He was diagnosed with Trisomy 13, Patau Syndrome, at 20 weeks gestation. I was so elated when he took his first breath, as many people had told us we would not be able to hold our child alive. We were able to bring him home on Saturday afternoon, where he was surrounded by his loving family. He passed away in my arms at 4:30 am on Monday, April 21st, 2008. He blessed us with the best 63 ½ hours. I am so grateful for the time we had. I love Alexander and miss him immensely. He is forever in my heart.
Missing GRACE was at the hospital to capture Alexander’s sweet cries on video, take photographs, make impressions of his hands and feet, and provide resources and information. We also attended the support groups they organize. The mementos, resources, and support they provided are priceless.
Please join Team Alexander on September 19th or donate in honor of his memory.
I volunteer as part of the Core Team and as the Run Timing Crew Leader, if you can join me to volunteer, that would be great too!