Emma Foley is a smart, delightful, funny, and courageous 15 year old girl with Rett Syndrome who awaits your help. Emma was born normally and developed like every other infant until she was about a year old. Then the cruelty of Rett Syndrome began, and Emma's skills were stolen from her. She was propelled into a body that didn't listen to her-hands that no longer picked things up, a voice that no longer could speak. Emma went from a toddler on the verge of independence to a child completely dependent on others for every aspect of her daily life. But Emma is remarkable, and she never gives up. She fights Rett every day and her courage and bravery inspires. Now, at 15, while friends are learning to drive and going on dates, Emma spends her days in therapy fighting to keep her body strong, always with a smile on her face and a light in her eyes.
But you can help us change all this. Rett Syndrome Research Trust's Roadmap to a Cure has a plan to cure Rett and we are so close. Gene therapy is no longer a dream but a reality. Now more than ever we need your help to fund this cure.
All donations go directly to Rett Syndrome Research in honor of Ragnar4Rett!
Your donation is much appreciated!
All our love,
Allison, Kevin, Emma and Abigail