My mom was recently diagnosed with Idiopathic Pulmonary Fibrosis, IPF for short, and has been told the only cure for this disease currently is a lung transplant. While she is still functional her lungs are currently only working at 37%. When asked what I could do to help her she said "the best thing anybody can do right now is sign up to be an organ donor". Already being an organ donor I decided I would try and help her by organizing a bike ride then having a dinner afterwards. Her favorite hobby is doing charity rides on her bike so this seemed like a perfect fit. The event will serve as a promotion to sign up to be an organ donor with all proceeds from money raised going to the PFF foundation.
Pulmonary fibrosis (PF) is a condition that causes lung tissue to become thickened, stiff, and scarred. The lungs eventually lose their ability to transfer oxygen into the bloodstream, making everyday activities such as breathing and walking extremely difficult. It is a progressive disease, which means it tends to worsen over time. Every individual diagnosed with pulmonary fibrosis has a unique experience with the disease and there is no “standard” or expected clinical course.
With no known cure, the disease is often fatal within three to five years of diagnosis. In the United States, PF affects more than 200,000 people.