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My Story and Why I Walk

My name is Laurie Chandler, I am originally from New Jersey and I live in New Castle New Hampshire with my Husband, Clarke.

Ten years ago, everything was fine until I began coughing, a persistent dry cough, shortness of breath, fatigue and loss of weight. As time persisted, and the cough worsened, we began to get more earnest in finding out the cause. Turns out my symptoms were telltale signs of pulmonary fibrosis, a devastating disease resulting from progressive scarring of the lungs. There is no known cure. (PF affects more than 200,000 people and results in 40,000 deaths annually. Fifty-thousand new cases are diagnosed every year). I had pulmonary fibrosis for seven years before I was diagnosed.  I visited multiple hospitals, where each performed their own battery of tests before it became obvious that time wasn’t on my side. I was diagnosed by Dr. Evans Fernandez, a physician with the National Jewish Health, in Denver, CO. The doctor put me on Oxygen and said he would help get me listed for a lung transplant but, in the meantime, I should go home and put my affairs in order.  He didn’t think I would be listed in time; it was that dire. However, The Brigham and Women’s Pulmonary Fibrosis Foundation met with me immediately, assisted me with the process of getting listed, they educated me about the disease and the lung transplant process. I then became so sick that Brigham placed me in an induced coma and put me on ECHMO – my lungs had failed.  I was no longer able to breathe on my own.  As time went on, they were about to de-list me when a set of lungs came in which were a perfect match.  They had to think long and hard about whether to give them to me.  They said I was the 3rd sickest lung patient they had seen.  They believed in me…my drive and my WILL to live.  They gave the lungs to me!  And for this, I will forever be indebted.

I feel very fortunate and I am extremely grateful for each and every day.  Now, I enjoy traveling, reading and kayaking. I take part in a variety of local municipal and Non-Profit organizations and I am a board member of the Pulmonary Fibrosis Foundation. I believe a good “attitude” is key to pretty much everything in life. My good health allows me to participate in causes that are near and dear to me. I can help others, particularly those with Pulmonary Fibrosis, in a meaningful way. As a board member of the Pulmonary Fibrosis Foundation, my goal is to give patients hope and help them avoid the pitfalls so they can get a quicker diagnosis and access to resources. Please consider donating to this cause.

Pulmonary fibrosis (PF) is a condition that causes lung tissue to become thickened, stiff, and scarred. The lungs eventually lose their ability to transfer oxygen into the bloodstream, making everyday activities such as breathing and walking extremely difficult. It is a progressive disease, which means it tends to worsen over time. Every individual diagnosed with pulmonary fibrosis has a unique experience with the disease and there is no “standard” or expected clinical course.

With no known cure,  the disease is often fatal within three to five years of diagnosis. In the  United States, PF affects more than 200,000 people. 

Because of the work of the Pulmonary Fibrosis Foundation (PFF), there is hope for those living with PF. Your donation helps fund crucial research, increase awareness, and sustain vital programs that help people with PF and their families live better lives. 

I imagine a world without pulmonary fibrosis. Thank you for helping me lead the way!

 

 

 

$6,320.00

achieved

$5,000.00

goal

of your goal reached

My Supporters

  • Ann Peters A day ago
  • Anonymous Donor 1 week ago
  • Scott Staszak and Laure Dussubieux 2 weeks ago
  • Anonymous Thank you! 2 weeks ago $47.08
  • Laura Cleminson To a woman always moving forward for herself and others. xo 2 weeks ago $25.69
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  • Vigilant Capital Management Go Laurie Go! As always, you're an inspiration to everyone at Vigilant. Last month $500.00
  • Colleen and Michael DesRochers Laurie we love your determination Last month $300.00
  • Thomas O'Dowd 5 weeks ago $256.87
  • Nancy Euchner Thank you for sharing your story, Laurie. Your can-do attitude and generous spirit inspire me each and every day. I'm blessed to have you in my life! Last month $256.87
  • Sally Jackson I’m happy to support Laurie Chandler and the work she does for this cause. Last month $256.87
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