Fundraising for the CJD Foundation

The Pohl Dopirak Family

In memory of Katie (Pohl) Dopirak

After first experiencing symptoms (back pain, loss of appetite/weight loss, balance issues) in late February 2018, Katie was diagnosed with sporadic CJD on May 8, 2018.  She passed away on October 10, 2018, one week after her 43rd Birthday.  

CJD is said to be extremely rare, with 300 reported cases in the U.S. annually.  However, given the difficulties in diagnosing it, and the number of cases we've heard about anecdotally since Katie's diagnosis, we believe the number is much higher.

CJD is a horrible condition that creates misery and hopelessness.  Although there was not a cure or a treatment for Katie, there were valuable, recent scientific advances that were a benefit to us, such as the RT-QuIC diagnostic test.  

Our goal going forward is to use our experience with Katie to help others facing CJD.  The funds raised in memory of Katie will be used to support the CJD Foundation, which was a great source of information and comfort to us during Katie's ordeal.  Ultimately, we would like to raise enough money to fund research grants through the CJD Foundation to support research efforts dedicated to finding treatments and hopefully a cure for CJD.

*Update 10/30/18--Thanks to the wonderful generosity of so many donors, we've reached our initial goal of $25,000 and are now striving for $40,000.  Keep the momentum going and spread the word...we can make a difference, just like Kate did!!!






of your goal reached

My Supporters

  • Anonymous 2 hours ago
  • Ericka Huntsberger Our deepest sympathies for both families! Love, The McCalla Family (Erick, Holly, Nick and Ericka) 2 days ago $106.00
  • Mark and Emily Wilhelm Our deepest sympathies during this difficult time. 4 days ago $106.00
  • Chris Conrad The Pohl / Dopirak families and all who knew and loved Katie are and will remain in my prayers. 6 days ago $100.00
  • Paul and Debi Walsh 2 weeks ago $106.00
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  • Anonymous 3 weeks ago
  • Jan and Milan Dopirak 4 weeks ago $2,500.00
  • Anonymous 3 weeks ago
  • Greg & Julie Stroh Our thoughts and prayers are with you and your family. 5 weeks ago $1,500.00
  • Lisa Miller In loving memory of Kate. A cherished wife, mom, author and friend. She made a lasting impact on many lifes. I am thankful for her friendship and sisterhood from Allegheny. Last month $1,060.00
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