Linda Johnson, mother and wife, passed away from CJD on January 20th, 2018. Over the course of about two months, a lot of testing would be done to try and find an answer as to what was going on. She would be with us for one moment and incoherent the next. They finally sent her home on January 16th, saying there was nothing more they could do for her. CJD was the closest answer they came to based on all the testing they had done. On January 16th, we helped her open all of her Christmas presents and birthday presents as she had missed both of those holidays. She was laughing and smiling, and it was like she was finally home with us. But on January 20th, she was barely able to speak or hold her head up. She would pass away in the late evening.
We loved her so very much, and we are hosting the benefit night on her birthday to keep the good memory of her alive. We hope to raise money to help the CJD Foundation fund medical research and education and to help other families who need help during this difficult time.
Please consider donating so we can help other families in need.