On February 17, 2019, I lost my father to this terrible disease. The content I wrote below while he was in the end stages. My father is my superhero and I'll always keep him in my heart.
Let's be real. I can write about my father for hours and hours. I'd write so much about him that I'd develop carpal tunnel syndrome and probably crash this website. Everyone knows how much I love my father. In his life he's suffered. Whether it was the multiple spinal surgeries, the battles with lymphoma (cancer), diabetes, thyroid issues, heart damage, negative effects from chemotherapy, and the multitude of ailments and issues that I'm forgetting about. Adding ontop that in a span of 8 years my father lost both his parents and 4 brothers and 1 sister way too young.
Pulmonary Fibrosis is a terrible disease that stops people from doing what they love to do. My father is currently bed bound unable to walk due to how much this disease has deconditioned him. The only cure for PF is a lung transplant and my father has been deemed too weak to be a candidate due to his deconditioned state. All we've ever wanted was to give my father a fighting chance, and we weren't aware we'd need to fight doctors and insurances just to get those chances.
In the end, not many people know of PF, they know of "lung disease" but not of PF. Not even all doctors know of PF, even for my father they were looking everywhere BUT his lungs when he first had symptoms. My goal is to raise awareness of this terrible disease and to hopefully help to be the end of PF suffering.
Pulmonary fibrosis (PF) is a condition that causes lung tissue to become thickened, stiff, and scarred. The lungs eventually lose their ability to transfer oxygen into the bloodstream, making everyday activities such as breathing and walking extremely difficult. It is a progressive disease, which means it tends to worsen over time. Every individual diagnosed with pulmonary fibrosis has a unique experience with the disease and there is no “standard” or expected clinical course.
With no known cure, the disease is often fatal within three to five years of diagnosis. In the United States, PF affects more than 200,000 people.
Because of the work of the Pulmonary Fibrosis Foundation (PFF), there is hope for those living with PF. Your donation helps fund crucial research, increase awareness, and sustain vital programs that help people with PF and their families live better lives.
I imagine a world without pulmonary fibrosis. Thank you for helping me lead the way!