My daughters journey has been the road less traveled ever since she was born. She has a rare POGZ gene mutation now known as White-Sutton Syndrome. She started her seizure battle in 2017 and was diagnosed with Epilepsy. Once we have a seizure under control she seems to develop a different type. 2018-2019 school year has been the hardest with drop seizures happening 10-15 times a day. In February 2019 she was diagnosed with Lennox-Gastaut Syndrome. I walk with my Rare Warrior Princess because she is a brave fighter! This tough cookie has battled her whole life and continues to come out on top! Her determination, stubbornness, and drive to be independent has helped her immensely! I also walk to stop seizures, find cures, and save lives of all the Warriors with Epilepsy!