In Loving Memory

May 22, 1951 - March 9, 2019

Our dear Mom, Wife, Sister, Aunt, Grandma and Friend went to be with Jesus on March 9, 2019 after a long battle with CJD.  This disease wreaked havoc on her brain and devastated our family.  

After several months of noticeable confusion, unexplained weight loss, and tiredness, Mom experienced a stroke-like episode in December 2017 that landed her in the hospital. While relieved it wasn't a stroke, we knew something was seriously wrong.  After 7 months and countless doctor appointments and tests, we received a diagnosis of CJD in June 2018.  A disease known to strike "one in a million" and, most often, at random.  We were heartbroken and completely at a loss.

The neurologists told us that there was nothing they could do and referred us to palliative care. The best we could do was to live every day to the fullest and enjoy every moment we could with our sweet Mom.  She enjoyed spending time with her family the most, her grandbabies being her best therapy.  Never complaining, she was a warrior - so strong and determined to fight for as long as she could.

Mom may have lost her battle, but we, her family, will continue to press on in the war against CJD.  It is our goal to fund one (or multiple) research grants to further study this horrible disease. So much more needs to be done to understand this disease (how did this happen? where?  when?). There are currently no treatments to slow down or reverse the progression.   It is our hope that a cure will be found soon so that other families will not have to watch the light of their loved one be extinguished.

$15,543.44

achieved

$20,000.00

goal

of your goal reached

My Supporters

  • Facebook Donor 6 days ago $100.00
  • Facebook Donor 6 days ago $50.00
  • Facebook Donor 1 week ago $50.00
  • Facebook Donor 1 week ago $250.00
  • Facebook Donor 1 week ago $69.00
  • View More Recent Supporters
  • Vertex Pharmaceuticals Company Match Christine Rostafin August 2019 $3,000.00
  • Christine Rostafin August 2019 $3,000.00
  • Renee's Birthday FB Fundraiser September 2019 $2,200.00
  • Raymond Middendorf My love. September 2019 $1,060.00
  • Brian Ayer So sorry for your family’s loss ☹️ Love, Brian & Jason April 2019 $500.00
  • View More Top Donors