Family and friends - as some of you may know, I will be running the Comrades marathon on 9 June - 87km from Durban to Pietermaritzburg. I will carry my father in my heart and on my back - I know that my memories of him will help me to make it to the finish line.
I will be running this marathon for the CJD Foundation, an organisation that supports families, like mine, affected by prion disease.
Creutzfeldt-Jakob Disease (CJD) is a rare, rapidly progressive neurodegenerative disease, one of several Prion Diseases caused by prion proteins that misfold in the brain. There is no treatment or cure and the disease is invariably fatal.
The mission of the Creutzfeldt-Jakob Disease Foundation is to support families affected by Prion Disease, raise awareness, and support medical education and research.
The CJD Foundation can only do what they do with the help of donations. Please help me to support the foundation by making a donation - no amount is too small. Every bit makes a difference.
In memory of my beloved Late Husband and Father
And Grandfather of our children and Grandchildren Errol Shuster, in Honour of Simone’s
Tenacity in running this race to create awareness and donate for Research for this terrible disease. So proud of you Simo
Errol, z’l, you are missed and loved. You are carried in simone’s heart and soul with every move she makes and you would be so damn proud of the beautiful life she built. You would not understand why the heck she was running this insane marathon but you wo
Jessica & Richard Corcos/Shuster
So amazing Simone! What an accomplishment this will be, wishing you the best of luck! Sending lots of love
Rich & Jess
Ubuntu! What an incredible achievement for such a worthy cause. You're a star and an inspiration. Very well done!
Hoping to find a cure soon.