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Amazing Avery

Avery is a sassy and sweet 4 year old and she was born with Spina Bifida.  She loves collecting rocks, Lucky Charms cereal, youtube videos, and her sister's (sometimes).  When Avery was diagnosed with SB during my pregnancy, I felt like the world was crumbling around me.  I grieved for the child I would never have instead of celebrating the new life that was to come. 

Avery is medically complicated (not fragile) but then again she is complicated in every way.  She is fiercely independent and full of attitude.  She's funny and smart and kind and annoying.  She makes me groan and sigh in exasperation and in the same breath makes me choke on a giggle I try to suppress.  I would not change one thing about Avery.  I embrace everything that she is, and everything that she has made me.  I try to live my life celebrating all three of my girls for everything they are and everything they will be...

The Spina Bifida Association of Kentucky has enhanced our life beyond measure.  I have learned to be a better parent and advocate.  I have developed incredible friendships and I love watching my children grow up with other kids and families that are just like us. 

Consider making a donation in Avery's name.  Every penny raised goes towards SBAK's mission to promote prevention and enhance the lives of those affected.    





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