Danielle's Personal Fundraising Page

Team Captain for Jenna's Seizure Soldiers

Jenna's Story

In November, 2012, Jenna was taken by ambulance to Altru Hospital in Grand Forks. She had a seizure at school, and it was confirmed through MRI that the seizures were coming from an abnormality in the left temporal lobe of her brain. For about a year prior to this, she had been feeling ill and vomiting many times a day. Jenna had many tests and saw several gastroenterology specialists, but we were never able to figure out what was causing it. After receiving this news, it started to become clear that she had been having seizures all along. We were referred to Mayo Clinic by the local neurologist, and after meeting with several neuroligists in Rochester, we were told that it looked like she had what's known as Mesial Temporal Sclerosis. We were also told that it responds very well to a surgery that would remove the temporal lobe and hippocampus on her left side.

She had this surgery on July 19th, 2013, and recovered from it very well. We thought we were through the worst and that Jenna was on her way to a normal life. On July 31st, 2013, however, we received some very unexpected, devastating news. Her pathology came back with an extremely rare neurological disorder called Rasmussen's Encephalitis. 

Rasmussen's Encephalitis has very devastating, irreversible effects. Due to it's rare nature, there are not many treatment options, and there is no known cure. The only known way to have a chanve at relieving seizures is a hemispherectomy, in which the entire half of the brain that is being attacked by the disease is removed or essentially disconnected. IVIG is a treatment that will hopefully slow the progression of the disease. Jenna has been doing this treatment since 2013. 

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My Supporters

  • Sheila Denault I hope you make your goal and have a wonderful time on the day of the walk! 2 weeks ago $20.60
  • Jade Mudge 3 weeks ago $100.00
  • Kaylee Jaeger Jenna you are one strong and determined young woman. You inspire me everyday. Love you girly! Last month
  • Shelly Gust Jenna I wish I could be there for the walk, however can't make it. We pray each day, for healing for you❤ your such a strong and very brave girl. Last month $50.00
  • Stacy Hallgren Last month $50.00
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  • Jade Mudge 3 weeks ago $100.00
  • Shelly Gust Jenna I wish I could be there for the walk, however can't make it. We pray each day, for healing for you❤ your such a strong and very brave girl. Last month $50.00
  • Stacy Hallgren Last month $50.00
  • Christian Wagner Last month $35.00
  • Sheila Denault I hope you make your goal and have a wonderful time on the day of the walk! 2 weeks ago $20.60
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