Team Charlie Fundraising Page
Hi everyone!!! The HFGF walk, along with Team Charlie, is going to be very special this year as we will celebrate all of the progress Charlie has made!!! For years, day after day, we've spent countless hours infusing clotting factor into Charlie to prevent or control his bleeding. Bleeds were very painful and would prevent him from doing the things a normal kid would do. I had a wheelchair ramp put on my house several years ago because I could no long lift Charlie in and out of the house. But in May 2018, Charlie started taking a BREAKTHROUGH drug that is a once a week subcutaneous shot and he hasn't had a bleed since!! It has definitely been a miracle for us and has changed our lives dramatically! So please come celebrate and take the victory walk with us! If you can't make it, please consider donating to Team Charlie! We want to take back the traveling trophy this year!! XOXO Cindy
DID YOU KNOW THAT 91% OF HFGF FUNDRAISING DOLLARS GO BACK TO THE FLORIDA BLEEDING DISORDERS COMMUNITY? THOSE DOLLARS SEND OUR KIDS TO A MEDICALLY SUPERVISED CAMP, PROVIDE FINANCIAL EMERGENCY ASSISTANCE AND SCHOLARSHIPS, AS WELL AS CONTRIBUTE TO EDUCATIONAL PROGRAMS AND ADVOCACY EFFORTS.