As soon as my Dad, Roger Iker, buried his wife last year, he started becoming unsteady and exhibiting all sorts of symptoms doctors could not understand. He underwent multiple MRI's lumbar punctures, and other procedures with multiple wrong diagnoses for what could be troubling him to no avail.
My wife, son, and I became involved with his care January, 2019 after a neighbor found him collapsed in the driveway and thought he had a stroke. We tried psychiatric treatment, treatment for viral infections and all manner of other hopes for cures, until finally a family friend mentioned my Dad's neurologist should test him for CJD.
His own doctor balked that the condition could be so rare as CJD, but tested him anyhow, and we received the diagnosis that he had protein 14-3-3 just a month before my Dad passed July 7, 2019. We are endlessly thankful for the weeks we had with no frustration wondering what could be wrong with my Dad and just had some peaceful goodbyes with him before he finally succumbed to this brutal disease.
We hope to raise money to fund research and awareness so that other families may reach diagnosis earlier in their family members' lives in order to have more peaceful time with their loved ones, and for research into less invasive means for diagnosis than lumbar punctures. We donated patches of his skin in order to research skin tests that could help improve quality of life for others, and donated his brain so that doctors might research this disease further. Any gifts friends and family may also want to give would be put to more use to help other families down the road as well.