My Personal Fundraising Page

In Honor of Melody Schuster

After several months of doctors visits, Melody was diagnosed with Creutzfeld-Jakob Disease. It is extremely rare and there is currently no treatment nor cure.

CJD is widely misunderstood and misdiagnosed, but essentially it falls under the umbrella of dementia. Throughout the manifestation of CJD, Melody experienced memory loss, impaired speech, and decreased mobility. However, the moment she heard a familiar song she was herself again, often dancing and singing or humming along. She was always incredibly social, and CJD did not impair her delight in seeing people and making connections with friends and family.

Your donation to the Creutzfeld-Jakob Foundation will ensure further research to discover a means of preventing and best treating with those suffering from the disease, as well as provide support to families who have loved ones with CJD. 





of your goal reached

My Supporters

  • Michelle VanWaldick So sorry for your loss. Keeping all of you in our thoughts and prayers September 2019 $53.00
  • Debbie Marshall So sorry for your loss. Love Grammy and Aunt Debbie September 2019 $40.00
  • Susan Buduson September 2019 $20.00
  • Jaime Ryan Thinking of your family ❤️ September 2019 $26.50
  • Jeziel Ayala September 2019 $53.00
  • View More Recent Supporters
  • Michelle Hines Jessica and family, we offer our heartfelt sympathy and so much love to you. In memory of your mother know we celebrate you every single day! with love, Michelle, Corn and Andy August 2019 $265.00
  • Howard and Karen Kaplan With love and sadness August 2019 $250.00
  • Maddie & Juan Felipe Kaplan/Ortega August 2019 $107.06
  • Melissa Bukuru Thinking of you and holding you in our hearts. - Melissa and Thomas September 2019 $106.00
  • Andrea Hines In memory of Melody, given in the spirit of love and friendship shared with her daughter. May it help researchers find an understanding of the disease. August 2019 $106.00
  • View More Top Donors