Diagnosed with Stage IV ALK (Anaplastic Lymphoma Kinase) positive Non-Small Cell Lung Cancer at 41 came as a shock. I sought medical attention after experiencing periods of shortness of breath and coughing during activity. Due to my persistence and that of my doctors, I soon found that my shortness of breath was much more than a nuisance, but rather cancer that had metastasized throughout my body causing havoc on my lungs.
ALK+ lung cancer is a very rare disease, representing about 4% of NSC diagnoses; patients whom typically are younger than average and do not have a smoking history. There are several gene mutations found in lung cancer which are not hereditary but rather what doctors call “acquired” mutations that happen during your lifetime. Some mutations are random and unexplainable and others can be due to breathing tobacco smoke, air pollution, certain chemicals and radon gas.
It has been four years and counting since my diagnosis and I am currently in remission. I credit my current good health to the diligence of my oncologists staying up to date on this rare form of lung cancer. I believe receiving a biomarker test (an analysis of the tissue/blood) during my initial diagnosis was crucial as it revealed I had a rare gene mutation that was driving my cancer, giving me more options for the best course of treatment.
Fortunately, several gene mutations can be treated with targeted therapy. These inhibitors, usually in pill form, can stop or slow the growth of cancer cells without harming healthy cells. These therapies often are more effective at improving quality of life.
November is Lung Cancer Awareness Month and the united message is that “Anyone with Lungs Can Get Lung Cancer.” Both worldwide and in the United States Lung Cancer is the most common cancer and the leading cause of cancer deaths. Lung cancer is often referred to as a "silent killer” because symptoms are not typically predominant during the early stages when surgery and/or treatments can be effective.
Having a cancer diagnosis hasn’t been all bad. It has brought forward a profound shift in perspective, touching many areas of my life. I have discovered a deep well of resilience. Family and friends are in the forefront and I have learned that accepting support can be just as important as giving it. I am enjoying time with my husband Tim; and our twins, Nicholas and Olivia whom are in their final year of high school. We look forward to watching the future unfold before them and traveling once empty nesting is upon us. Adventure awaits!
If you, or someone you know has lung cancer or you just simply want to help please donate ~ any amount helps move the needle towards our goal!