I’m excited to be participating in the Alport Syndrome Foundation's 2025 Annual Campaign!  I recently had the honor of being appointed to the Alport Syndrome Board of Directors.  , 

My handsome and wonderful father, Edward, died of Kidney Disease at age 45 in 1960.  This was devastating for my mother, my three sisters and myself. Sadly, Dialysis and Kidney Transplants were not available to him at the time.  Alport Syndrome has been an under researched disease up until very recently. Many people in my family have this genetic kidney disease, including myself.  Three of my nephews have had successful kidney transplants.  My son, Jeffrey, age 34, needs a living donor so that he may have a successful kidney transplant in the near future.  The Alport Syndrome Foundation is a patient driven organization.  We are working diligently with the medical community and Pharma Companies, to make strides in funding research that will drive, awareness, education, and effective and earlier diagnosis and treatments for Alport Syndrome.   Our goal is to find a cure!

 Here's how you can help:

• Donate: Contribute whatever you can. No amount is too small.
• Spread the Word: Share my fundraising page with your friends, family, and social networks.  

Thank you for standing by me in this effort. Your support means the world to me and my family.