On July 25th I will be running the Queens half marathon. Since I will be running this race I thought it would be a great opportunity to raise awareness and fundraise for a cause near and dear to my heart .
Phelan Mcdermid Syndrome. Many of you probably never heard of this . It wasn't until our nephew John was diagnosed that we heard of this either . John was misdiagnosed for years with other developmental delays it wasn't until he received genetic testing that his family knew he had this. Since then their family and friends have been trying to raise awareness and fundraise to help those effected .
John faces challenges everyday but his ability to overcome them are amazing ! John is a sweet, funny, loving boy. To know him is to love him?
It is my hope that through any money I raise more research could be done to help learn more and help anyone effected by Phelan Mcdermid Syndrome.
I will run this race for John ? and all effected by this syndrome . Please help me reach my goal ! No amount is too small !
Thanks :)
$2,612.20
achieved
$2,500.00
goal
of your goal reached
My Supporters
- Elena Punzo ❤️❤️ July 2021
- Kristi Zegel ❤️ July 2021 $26.25
- John and Janice Travan July 2021 $52.50
- Anonymous July 2021
- Emily Toscano July 2021 $26.25
- Welsh Family Maria thank you so much for supporting the Phelan McDermid Syndrome Foundation and for Running in honor of John. We can’t wait to cheer you on! June 2021 $315.00
- John & MaryLou Welsh Grandma &Grandpa think your the greatest. June 2021 $150.00
- Mai Puleo June 2021 $105.00
- Alex & Allison Dionisio June 2021 $105.00
- Maryann Triolo We love you John !!! June 2021 $105.00