Emily's Garden Fundraiser

We are donating bouquets of flowers again this summer to raise money for the Phelan Mcdermid Syndrome Foundation. Our daughter, Emily was diagnosed at 3 years old with phelan mcdermid syndrome. This is a rare syndrome caused by a genetic variant on her shank 3 gene which causes, intellectual, motor and behavior challenges. Emily continues to grow and thrive each day and works incredibly hard to overcomes many of these challenges. We are fortunate to have a strong foundation that supports newly diagnosed families, helps navigate families during times of crisis and advocates for therapies in order to treat phelan mcdermid syndrome which currently has none. Many doctors and specialists have never heard of the syndrome, but the foundation has connected us with experts in the field and research studies. We are currently attending a PMSF conference this summer in Minnesota which brings all the experts around the world together to present on new therapies, clinical trials, the latest information, medical advice etc... and most importantly brings together all the families around the world to connect with one another. All of this is not possible without money raised from donations.

Tell your story here! Your supporters will want to know about you and why you’re fundraising for this cause.

$2,223.20

achieved

$2,500.00

goal

of your goal reached

My Supporters

  • Anonymous June 2024
  • Melissa Oliver June 2024
  • Matthew Oliver June 2024
  • Jp Girón June 2024
  • Katerina Holst May 2024
  • Anonymous Here to support you in this journey! September 2023 $1,000.00
  • Frank Schiavone July 2023 $262.50
  • Babette Cento For our sweet Emily! July 2023 $105.00
  • Anonymous July 2023 $105.00
  • Samantha Schiavone Love you Emily! July 2023 $52.50