Sedona’s First Birthday Fundraiser

To celebrate our sweet baby turning ONE, we’re asking for donations instead of gifts.

 

Sedona was born on October 28, 2024, making quite the entrance. What we didn’t know at the time was that she had a congenital heart defect called Pulmonary Valve Stenosis.

 

After a challenging start—including a NICU stay and a balloon valvuloplasty procedure at just 7 weeks old—she’s now thriving. Each growth spurt will show whether her heart valve is keeping up, and while there’s a chance she may need future procedures or surgeries, her outlook is positive.

 

This first year has been full of challenges and joy, and we are so grateful to be celebrating Sedona’s first birthday with her doing so well. The research funded by the Children’s Heart Foundation could directly impact her future, as well as the futures of countless other children with congenital heart defects. Exciting advancements are already underway, such as minimally invasive valve replacement techniques.

 

This foundation has become deeply meaningful to us—it feels like an investment in our daughter’s bright future. We feel blessed with more than enough physical items for our children at home, so instead of gifts we kindly ask for donations to the Children’s Heart Foundation.

 

Thank you for celebrating with us, and for supporting something so close to our hearts.

 

Recent Activity

The Children's Heart Foundation Mission

The Children's Heart Foundation was founded in 1996 and is the country's leading organization solely dedicated to funding congenital heart defect (CHD) research. 

Our mission is to advance the diagnosis, treatment, and prevention of congenital heart defects by funding the most promising research.

My Supporters

  • Katie Knepler Last month $51.75
  • Diane Jannetto Last month $258.75
  • Katie Mack From Horwath Fam Last month $20.00
  • Charles Cranmer October 2025 $51.75
  • Monica Burkoth October 2025 $51.75
  • Diane Jannetto Last month $258.75
  • Sean Greenya October 2025 $103.50
  • Katie Knepler Last month $51.75
  • Charles Cranmer October 2025 $51.75
  • Monica Burkoth October 2025 $51.75

$848.00

achieved

$2,000.00

goal

of your goal reached