Let’s Move Mountains for Collagen 6 CMD

Our five year old daughter, Amelia, lives with a rare condition called Collagen 6 Congenital Muscular Dystrophy (CMD), a progressive disorder that affects muscle strength and mobility.

For Amelia, this means her muscles tire more quickly, her joints can be tight, and she faces extra hurdles like scoliosis. But if you’ve ever met Amelia, you know that her spark, determination, and smile shine brighter than any diagnosis. She takes on therapies, dance, gymnastics, and daily adventures with the kind of positivity that inspires everyone around her.

We’re raising funds to support Cure CMD, a leading organization driving research, awareness, and hope for families like ours. Every donation, big or small, directly impacts this important cause. Cure CMD is a U.S. registered 501(c)3 nonprofit organization that focuses solely on CMD and our donations will be allocated towards her subtype-specific research, treatments, and support.

There is no cure yet for Collagen 6 conditions, but there is hope. Research is moving forward, and families like ours are working hard to support it. Every dollar raised brings us closer to treatments that can help Amelia and so many others live stronger, fuller lives. Thank you for believing in her, cheering her on, and being part of her story.

#AmeliaStrong #CureCMD #SomebodyPrayed

$55,763.32

achieved

$15,000.00

goal

of your goal reached

My Supporters

  • Anonymous 2 weeks ago $53.00
  • Anonymous Last month $53.00
  • Anonymous March 2026 $53.00
  • Anonymous February 2026 $53.00
  • Anonymous January 2026 $53.00
  • Anonymous January 2026 $212.00
  • Anonymous December 2025
  • Anonymous December 2025
  • Charles & Mary Cassar December 2025 $200.00
  • Eucharist Cassar December 2025 $100.00
  • Barbara Williams December 2025 $200.00
  • Debra & Phillip Thomas December 2025 $200.00
  • Patricia Sells December 2025 $500.00
  • Kulsum Rashid December 2025 $50.00
  • Ralph & Cathie Perez December 2025 $100.00
  • Deepa & Sriram Jagtap-Madhava Rao December 2025 $201.00
  • Brian & Renee Mifsud December 2025 $100.00
  • J. Tychinna McKee December 2025 $100.00
  • Helena Langer December 2025 $100.00
  • Peter & Catherine Kurzyniec December 2025 $300.00
  • Event Donors December 2025 $7,876.00
  • Patrick Foley Honored to support Amelia and the Cassar family in their effort to raise awareness and fund research for Congenital Muscular Dystrophy. Amelia’s strength and spirit speak for themselves. Grateful to contribute to such an important cause. December 2025 $1,100.00
  • Albert & Janette Cassar December 2025 $1,000.00
  • Dave & Sue Cassar In Bloomerang under Melissa & Dan Cassar November 2025 $1,000.00
  • Linda Orlans November 2025 $1,000.00
  • O'Leary Foundation We believe in you and would love to be in your cheering section.  Stay strong and positive because your beautiful smile inspires the rest of us.  Love and support  from The O'Leary Foundation!! October 2025 $1,000.00
  • Heather Halpin Thank you for allowing us to share in this special fundraiser! December 2025 $530.00
  • Denise and George Maclean November 2025 $530.00
  • Gregory Aliotta God Bless you! November 2025 $530.00
  • Mohammad Abouali November 2025 $530.00
  • Patricia Sells December 2025 $500.00
  • Chad & Jessica Grant October 2025 $500.00
  • Ann Pizzo We Love you Amelia! Our prayers are with you and your beautiful family! Love, Uncle Sam, Aunt Ann, Sara, Gina, and Maria. October 2025 $500.00
  • Sandy Krus Keep smiling  December 2025 $318.00
  • Peter & Catherine Kurzyniec December 2025 $300.00
  • Thomas Castellani December 2025 $300.00
  • Michael Clinton December 2025 $300.00
  • Kevins Jewelers MI November 2025 $300.00
  • Bonnie Cassar Praying that they find a cure for this and we do enjoy hearing all about Amelia thru Danny And Joann. She is amazing! Bonnie & Clem August 2025 $300.00
  • David, Natasha, Eve Kramer December 2025 $265.00