$572,033.20

achieved

$500,000.00

goal

Support Global Programming

This fund supports global programming, like the Congenital Muscle Disease International Registry, Community Resources, Legislative Advocacy Team, Scientific and Family Conference, and yes, administrative and fundraising costs that ensure the long term health and sustainability of Cure CMD. In short, this fund provides the crucial foundation for executing our mission. Consider supporting these activities that benefit the entire CMD community by contributing to this fund.

Donate to a Subtype-Specific Fund

Collagen 6 | Dystroglycanopathy | LAMA2 | LMNA |SELENON

You may allocate your gift to one of our five subtype funds, as well as family funds dedicated to a specific subtype. Donations to these funds help drive our mission agenda, including research grant funding, attending scientific meetings & conferences, and relationship building with researchers, clinicians, and industry. Additionally, a portion of these funds support global programming.

As anyone living with CMD knows, hope is tenacious.

In 2008, Cure CMD was founded to fulfill a crucial unmet need for those living with congenital muscular dystrophy. There was very little research, no care guidelines, and no support for families doing everything they could to ensure a happy and engaged life for their affected loved ones.

Today, we've funded more than $4M in research across 70 projects, assembling some of the brightest scientific minds from around the world to identify treatments for CMD. We provide educational resources and support to families navigating this journey, to ensure they have every chance for a successful future. And most importantly, the voice of the affected community is at the heart of everything we do.

Our 2025 Agenda

  • Our Scientific and Family Conference (SciFam) returns August 1-5, 2025 in Philadelphia USA! Join more than 500 stakeholders at this one-of-a-kind event to learn, share, and connect with new and old friends, and help shape the CMD research agenda for the next two years.
  • New, subtype-specific care guidelines are coming! We want to ensure that affected individuals, their families, and their clinicians have the most up-to-date information about care optimization for their CMD diagnosis.
  • We continue to grow the number of participants in the Congenital Muscle Disease International Registry, and are adding new features to allow you to contribute to research. Haven't registered, or haven't updated your profile in awhile? Visit cmdir.org today!
  • We want to fund more research! Based on results from the projects we're wrapping up now, we'll identify new and promising research that takes advantage of the latest technologies.
  • Our Outreach Team is working to bring you new and updated content to support you in exceeding your goals.
  • Community members will again represent Cure CMD in Washington D.C. for 2025 Rare Disease Week on Capitol Hill, along with ongoing opportunities for you to get involved in Legislative Advocacy.

Cure CMD is a U.S. registered 501(c)3 nonprofit organization. EIN 26-2640975
Your donation is tax deductible to the extent allowed by law.
Questions? Email us at donate@curecmd.org