I had never heard of Neurofibromatosis (NF) until Emma was diagnosed. Very quickly, I learned that NF causes tumors to grow on nerves and skin, with no cure, few treatments, and an uncertain future. It changed everything—and became a lifetime of worry.
In the 15 years since, Emma has had nearly 30 MRIs, countless medical appointments, various therapies, and attended seven different schools. And through it all, she’s grown into the kindest, most compassionate person we know.
Recently, she graduated high school, landed her dream job with the Red Sox Kid Crew, and is about to move put and start in the Threshold Program at Lesley University.
I will never stop fighting for Emma and everyone living with NF. This year, as critical research funding fades, your support means more than ever. Thank you for standing with us.
xoxo mel