Coast to the Cure NF 2024

Lauren Gilbert

September 7, 2024 6:30am - 4:00pm

My Personal Fundraising Page

I am riding this year to support all the amazing things NF Northeast does for the NF community. Please join me in raising important funds that will not only help provide funding for critical advocacy work to secure federal research funding, but will help bring a little hope to those affected by NF. Neurofibromatosis (NF), pronounced neuro-fibroma-tosis, is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in or on the body.  More than 100,000 Americans are living with NF and it affects more people than cystic fibrosis, Tay-Sach’s disease, Huntington’s disease, and muscular dystrophy combined, yet is not commonly known and there is no means of prevention, very few treatment options, and no cure.   NF Northeast is a highly regarded resource for patients, physicians, and scientists. They have provided over $3 million in research grants, and through their advocacy, have been pivotal in generating over $600 million in federally funded NF research. They are known as the “organization with the heart” because theirs is a strong and caring community that provides support to newly diagnosed patients and their families.  

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My Supporters

  • Elizabeth DeHaven September 2024 $50.00
  • Lawrence Gilbert September 2024 $200.00
  • julia mcletchie September 2024 $200.00
  • Megan Spina Have a great ride Lauren! September 2024 $125.00
  • Barbara Ruane September 2024 $200.00
  • SS&C Technologies July 2024 $275.00
  • Lauren Gilbert July 2024 $275.00
  • Lawrence Gilbert September 2024 $200.00
  • julia mcletchie September 2024 $200.00
  • Barbara Ruane September 2024 $200.00