RSDSA and Supporting the CRPS Community
Complex Regional Pain Syndrome (CRPS) is a rare disease that affects the central and peripheral nervous systems. It is a debilitating condition marked by chronic pain, 24/7.
RSDSA supports individuals and families with CRPS. We strive to create a community for our Pain Warriors. Community is profoundly important to those with CRPS. Living with a chronic disease, in constant pain, often unable to work or cut off from family and friends, community is the bright light that sustains us.
With your Year End donations you can support CRPS Warriors with community, advocacy, research and education. Your donations can make a difference.
RSDSA is offering this site as a resource that CRPS Warriors can share with those close to them. Family and friends can learn more about CRPS and spread awareness about this rare disease and to raise money for future programs.
RSDSA Images of 2021
Orange Train for Paint Day
Kelly Considine & Jim for the Virtual Walk
Virtual Walk Team
Extinguish the Flame Walk - NJ
Inaara Jiwani
Picklin' for a Cure Pickleball Event & Tournament
2021 CRPS Awareness Month Videos
When you join or donate to RSDSA the funds you raise support: Community, Advocacy, Research and Education
Community
Facebook Lives and conferences unite CRPS Warriors and clinicians to hear about the latest treatment options.
Advocacy
We help our community advocate for healthcare and treatments. The Advocacy Committee collaborates with other Rare Disease organizations to raise awareness.
Research
We raise funds for research to find better treatments and a cure. Click here to read about RSDSA's current funded research grants.
Education
We provide webinars and conferences to learn about the latest treatment options. We have two medical online courses for doctors and nurses to learn more about adult and pediatric CRPS.