Patient Stories

Meet Sha'Nia

Born in 2016, Sha’Nia was rushed to Nemours Children’s Hospital immediately after birth for open-heart surgery because of a severe congenital heart defect. Nemours surgeons diagnosed Sha’Nia with Infradiaphragmatic Total Anomalous Pulmonary Venous Return.  

Sha’Nia was able to go home after multiple surgeries, but was soon rushed back to Nemours  when she went into atrial flutter, a condition that happens if the heart’s upper chambers beat out of coordination with the lower chambers, causing poor blood flow. Read Sha'Nia's full story.

Meet Jessica

Jessica was like any other happy toddler. She was giggly and playful and appeared totally healthy. When Jessica’s parents noticed a growth on her back, the last thing they expected was to hear that their 14-month-old little girl had cancer.

“As you can understand, our whole world was rocked. Living life when your child is fighting cancer is hardly living,” says Jessica’s mother, Kate. Jessica needed surgery to remove her tumor. Before and after surgery she received chemotherapy. With a schedule that required six days of chemotherapy followed by 21 days to recover, Jessica’s treatment lasted almost a year. When treatment was over, she worked with physical therapists for more than a year to learn how to walk again because of the damage the tumor had caused. Her family calls her “Little Fierce” because she fought so hard to beat cancer. Read Jessica's full story.

Meet Delaney

When Delaney was born, she seemed completely healthy. But within a few months, her family noticed the way she moved her legs seemed unusual. Delaney’s pediatrician took x-rays and ultrasounds of her hips to see if there was a problem, but everything looked normal. By the time she was a little over a year, she was walking and running, and everything seemed fine.

Then, when Delaney was about 18 months old, her family noticed a change: she was limping. But it was minor, she wasn’t in pain, and all her tests looked normal. However, things started getting worse and her family felt more and more helpless. One morning, Delaney woke up screaming. She refused to stand, and her knee was bright red, swollen and warm. Her pediatrician said Delaney should be taken immediately to Nemours. At Nemours, Delaney was diagnosed with Juvenile Idiopathic Arthritis (JIA). Read Delaney's full story.

Meet Mateo

Mateo was a normal 12-year-old healthy and happy boy. One day after a karate class, he complained about chest pain and was rushed to the ER at Nemours/Alfred I. duPont Hospital for Children. The next day it was confirmed that Mateo had Leukemia. He started chemotherapy treatment that same day, after further evaluation, Mateo was officially diagnosed with Acute Lymphoblastic Leukemia - High Risk T- Cell. Mateo went through very aggressive chemotherapy treatments, blood transfusions and platelets transfusions for the first 9 months. Today, Mateo is in remission and currently undergoing chemotherapy treatment until January, 2021. Despite missing all of his 7th grade school year, Mateo is currently attending 8th grade and will graduate with his classmates he was with since first grade! Mateo's love for music and playing the guitar stemmed from his experience with Child Life and the Music Therapy program. He can play some incredible classic rock tunes with ease!  Mateo was recently accepted to go to Salesianum High School this fall and cannot wait to attend. Watch Mateo's story.

Meet Ronan

Meet Ronan, who served as the Patient Ambassador at the 2018 Help Our Kids Radiothon. Ronan suffered a traumatic brain injury during the summer of 2016 when he was hit in the head with a bocce ball while on the beach with his family. After nearly losing his life several times due to cardiac arrest and a brain aneurysm, Ronan was put on ECMO life-support by the doctors at Nemours/Alfred I. duPont Hospital for Children. After making a miraculous recovery, Ronan underwent extensive physical, occupational and speech therapy to try to regain his motor functions, including the ability to walk. Today, Ronan is attending high school, working on rebuilding his short-term memory and making incredible steps towards recovery! He continues to support children affected by traumatic brain injury through his foundation, Project GreenHeart.

Meet Parker

In 2017, the Help Our Kids Radiothon patient ambassador was Parker. Parker wasn’t feeling well in December 2014. Her doctor thought she had a virus, so her parents were treating the symptoms, giving her Tylenol and Motrin. On December 20th, 2014 doctors discovered that Parker’s right lung had partially collapsed. She had MRSA pneumonia in both lungs, as well as the rhinovirus. Nemours doctors immediately operated drained fluid from her lungs and inserted a chest tube. The second day, her left lung collapsed. She had the same surgery on that side. “It’s like a guardian angel was watching over us. I could not believe how wonderful everyone was. They saved her life,” her mom, Leigh, said. Ultimately, Parker was in the hospital for three weeks. Today, Parker is doing very well and perfectly healthy. Her parents are so grateful for the care she received.

Meet Isaiah

Isaiah was diagnosed with Osteogenesis imperfecta (OI) or “brittle bone disease” when he was still in utero. His legs were bowed, his arms were short, and he had multiple bone fractures. Even when another hospital recommended she terminate the pregnancy, Isaiah’s mother, Vicky, refused to believe her baby was going to die.  She had Isaiah transferred to Nemours/Alfred I. duPont Hospital for Children three days after he was born. At the time, Isaiah’s bones were so fragile that Vicky had to carry him around on a special pillow. Nemours gave him treatment to strengthen his bones, a gradual, but successful process, and he received physical therapy. Although he faces some unique challenges, you wouldn’t know that by looking at his smile, which is often the brightest in the room. Isaiah shined as he held the title as Patient Ambassador for the 2016 Radiothon.