My journey into the world of Down syndrome began nearly 19 years ago with the birth of our third child, Sean.  Just a few days after his birth, the doctor spoke with us about some reservations he had based on some physical attributes observed in Sean (wide set eyes, flattened facial features, etc..) and suggested running some blood test. Later that day we were informed that Sean had Mosaic Down Syndrome.  This caught us completely by surprise as we had not opted for any pre-natal testing. Feelings of grief, confusion and perhaps anger, which in hindsight were completely natural but seem terrible now, were fairly quickly replaced by a sense of focus. Let's educate ourselves and learn as much as we can about what we are now facing as a family. But where. Here starts the CDSS part of thr story. We connected with CDSS through a care package presented to us at the hospital called 21 Welcomes. Through online chats and many hours poring over the resources produced by CDSS, we suddenly were filled with a sense of comfort and purpose. We got this. It's not so scary after all.

Fast forward 18+ years. Sean has filled our lives with many memories and experiences, both good and bad, but through it all, shines joy and noncommital love. We wouldn't have it any other way. CDSS and local groups such as the Greater Victoria Down Syndrome Society have supported us through this experience.

I hope you will find it in your heart to support the great work that CDSS does for the Down syndrome community in Canada. Staunch advocates for individuals and families, knowledgeable partners working to educate and shape the community that supports them and providers of expert guidance and learning for all around what it takes to help individuals with Down syndrome thrive. CDSS is the voice of Down syndrome in Canada.